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February 3,
2022 - I am not a fan of
the spelling of F E B R U A R Y. I
love the month of LOVE idea, but
not the spelling of said month.
There, I said it. W E D N E S D A
Y is another one that bugs me. I have been SO WEEPY since I started feeling better. I am SO HAPPY I feel so much better, but I get so weepy over unfair things and other things. I get weepy over life - that is what it is. Sigh. I have not really cried yet, but I'm due for a meltdown sooner than later. I hope I am not at work when it happens. I juggle a lot so I am sure it is just me being overwhelmed. Sigh. I stopped taking my anti-depression pill when I was so sick because the ZPak to treat my bronchitis doesn't play well with that medicine. I have not started it back up. Maybe that is the issue. (However, I am thinking it is just life overwhelming me in general.) February 4, 2022 - Last night I loaded up my bathtub with a lovely bath bomb and special mineral salts and turned on the hot water and left it to fill the tub. I went back to check it and the water was ice cold. I woke my husband up to announce we had no hot water. He tried to relight the pilot but it didn't work. I texted my neighbor (who is in construction) to ask him for numbers of plumbers if he would be so kind. He said he would come (today) and check it out for us as he's taken care of issues with his own water heater before. After that I just went ahead an ordered a new pilot light assembly. I picked it up on the way home from work this morning. I just popped in to work to change out tapes and then I handled a few other crisis matters and ran up, got the pilot assembly from Home Depot and then summoned my neighbor. He came right away and switched it out. It did not work, and he smelled gas strongly. "I think I broke the ignition assembly..." He found a place that had one in stock, so I flew up there to buy that. Once I got home, I let him know and he came over and replaced that. Still the pilot wouldn't stay lit. We just installed this water heater this spring, so I called the 1-800 number and talked to a nice lady about this issue. She said that it was probably the gas control valve (at the same time my neighbor got off the phone with his buddy who said the same thing). "Third time is a charm!" I said. He called the place back and they had one left in stock. I ran back up there and got that. My poor neighbor is in the bathroom still waiting for the water heater to drain (we used a hose to drain it but there must have been an air lock because it's still puking water into a bucket.) Sigh. Adventure. I snagged my husband a doctor appointment this afternoon due to his issues with stomach pain, white bowel movements, and dark urine. Sigh. He is at that appointment now. I hope the refer him to a specialist and that soon. Has to be his gall bladder. I'm no doctor, but I have the Mayo Clinic page.... All I know is I feel kind of overwhelmed. When I got the last part from the plumping store "Alright Now" was on the radio. I will take that as a good sigh...right? February 5, 2022 - My husband was at his doctor's appointment a long time and I finally got a call from the doctor himself. The doctor was very concerned and wanted him to go up to ER. "At least they can get scans and such while he's there." He is jaundiced. I failed to see him turning yellow. Ugh. The doctor said that is common not to notice since it comes on so slow. Also, the blood work and urine test the doctor had done were not good. His bilirubin numbers are very high and the doctor just wanted him in the hospital right away because, like I said, even if he couldn't get in to a room they could get all the scan done over night. I called my youngest son to come babysit Norman so I could take my husband up. We got to ER around 6:30. So full. Ugh. People were in beds in the hallways of ER waiting for a room when I left at three a.m. so I am happy at least my husband had a room to himself. So overcrowded. Very sad. No rooms at the inn, as it were. He did get his scans done. I just read the results on line. "Innumerable hepatic mass/lesion scattered throughout the liver parenchyma compatible with malignancy, likely metastasis." Well, now - that doesn't sound good, does it. Ugh. I won't think bad thoughts until I speak with a doctor in person. I came home at three a.m. and did dishes and laundry and took a hot shower then slept for three hours. I called the hospital this morning at 7 and he still wasn't in a room. I got to talk to him and he said he can have breakfast (which sounded like this pleased him). I will go up as soon as he gets a room to bring him some things and the charger for his phone. Then we will wait for someone to tell us what is next. Oh, and last night I asked the staff for a Tylenol for my husband for the pain he was in (a dumb question on my part since you don't want to use Acetaminophen when you have a bad liver and all but I wanted them to know he needed something for the pain) and the doc on duty said, "No, but we will get him some pain medicine." The nice nurse came in and shot him up with some morphine (normally a welcome relief when one is in pain) and he was happy for a bit, but when I stood up and told him I was going to the bathroom, and his eyes were dilated and he looked lost - so LOST. I yelled at him - "Can you hear me?" No response. He started twitching a bit and sliding down from the stool. I yelled loudly I NEED A NURSE and the main nurse ran in. He called for back up. My husband was reacting poorly to that morphine. They had to get five guys in there to get him on to the bed. They even brought in Narcan in case. Once they got him on the bed and after a bit he 'came back' and said, "Wow, that was weird!" We all laughed, but I'm pretty sure I peed myself during that. Sigh. The internist on duty came in and said, "I always tell them, you don't give that dose to people with liver issue - the patient just can't handle it." Well, now - thanks for the update Sherlock. Shouldn't that be on a DON'T DO THIS list somewhere?? My husband said he could still see us, but not talk or respond or hear. Wow. I told him "Geez, our Friday nights are normally so boring..." I was feeling overwhelmed. Now I'm just not feeling. That works best. February 6, 2022 - They finally got my husband in a room at the hospital yesterday morning about 10 a.m. They wanted to do surgery this morning to drain his bile. The bile duct is blocked by a tumor. Sigh. (There are many lesions on his liver as well, but an outright tumor at the area where the bile duct hooks up to go to his gall bladder.) They gave him five days to get the bile drained before it could put him in a coma. However, after talking with the surgeons yesterday about his layrngectomy and how his throat and trachea are reconstructed (I got to draw diagrams for surgeons!) they don't feel like they can safely do it at our hospital. They are arranging for him to get to U of M in Ann Arbor. He was supposed to get transport there today once a room opened up, but that is not going to happen. NO hospital has open rooms unless a covid patient dies which makes me terribly sad. However, it has to happen SOON since he could could poison himself with the backed up bile. Ugh. They will also get samples of the tumor so they can see what kind of cancer it exactly is. (In my book, CANCER is stupid and CANCER needs to GO AWAY.) I am packed and ready to go now at any time. Let's get this party started. When I left the hospital last night he said, before I walked out the door, "Well, we've had a good run..." That made me start crying. I had not cried outwardly at all since this started but I kept walking after that, crying. My worry is that he is giving up and it is too early for that. He sounds much more positive today. This morning he said, "I just want to take the next steps here..." which made me happier that he's trying to be more positive. I have stopped research on liver cancer. It was too depressing. So many things depends on what type of cancer it is, how much of the liver has it, and has it moved to other local organs, etc. I will wait to hear from a professional before I give it any more thought. I can't change a damned thing worrying about it. I will just try to be my normal upbeat Sandy self for him - his cheerleader. February 7, 2022 - STILL waiting on a room at U of M for my husband. Really? The internist told us yesterday that he has five days to get that bile drained. UGH. I guess worse comes to worse they could coordinate with people at U of M and try to do it here. I would just as soon he was at U of M, however, as they are the ones that reconstructed his throat and trachea after his cancer surgery. My hospital isn't so sure they know how to handle that set up. I don't wish anyone bad things, but I sure wish a room would open up. Once it does, they will transport my husband there in a wheel chair and I can follow up. I am all packed and ready to go. God Bless my kids for the support and back up and good dear friends I can vent to. Bless you all. Really - there have been so many monumental challenges in our lives the last three years - what's one more, right? My husband has been more upbeat and positive about things. He is totally yellow now head to bottom of belly. They gave him a yellow mask (even though he doesn't breathe through his nose anymore, but rule are rules) and I told him he looked like Spongebob. Prayers are welcome if you guys get bored. February 8, 2022 - We are in Ann Arbor! U of M had a room for him yesterday afternoon, so I ran up there, packed the boy up and whisked him away to U of M. We almost immediately met with his surgery team. I liked them a lot. Today will be surgery in the afternoon, but I'm not sure of time yet. He got to have one last meal as it were before they cut him off. He wanted vanilla pudding and Chex Mix. Smile. He is SO DAMNED YELLOW!! My family loves the show "The Simpsons" so we all agreed Dad went totally Homer. When I left the hospital last night, it was dark, and I'm old and driving in the dark is NOT MY CUP OF TEA. Ugh. I thought I had booked the hotel I stayed at before, but when I walked in there they didn't have a reservation. I went out to the car and looked. It was a hotel just up the road from where I was. Duh. BUT IT WAS DARK and I had no clue where I was going, so when I turned where I thought I was supposed to turn, it took me to the highway. I had a nice tour of where ever the hell I ended up, got my Garmin out and got back on track and found my hotel. Really. What else could go wrong? Really? I am sitting in my hotel room now. I worked for a while this morning, then had to run to get a hair brush. I FORGOT A HAIR BRUSH!!?!?!? The hotel has these very flimsy combs, but my hair requires a brush worthy of being a farm combine. Soon I will shower and go up to sit with my husband until surgery. He is SO READY to get this done. Today their main goal is to stent the bile duct so bile drains instead of backing up and spreading throughout his body like it is currently doing. They will attempt to get samples of the tumor that is blocking his bile duct - right at the point where the liver hooks up to the duct to the gall baldder. The cancer part is not the main thing at this point. It is to get that bile draining again. They said even when they do, he will be yellow for a while. If this surgery is successful he should be able to go home tomorrow. Then we'll tackle the tumors an liver lesions from there in our home town. It's always something. My youngest is babysitting Norman. Bless his soul. The kids have been very supportive and sending their Dad messages and the like. Norman practically has the front door torn down because he WANTS HIS DAD and DAD WENT OUT THAT DOOR and DAD HAS TO COME BACK THROUGH THAT DOOR. When I grabbed my husband's coat before I left yesterday, Norman was so excited, as he knew Dad was somehow involved in all this. My son had to forcefully hold him back as I left the house. We got notified by our house insurance that they are dropping us as of March 1st since we still have a fuse box. REALLY? They have covered us since 1985 with a fuse box. Oh well, one more thing. Sigh. My neighbor Justin gave me numbers of his electrician friends and I called and they came in to quote. It isn't as bad as I thought it would be, price wise. I will have to schedule this to be done soon. When it happens the power will be out 'for about 8 hours' they warned, so I will have to take Norman over to the lady who gave him to me - she said she would "board" him for the day and just cover my husband with lots of blankets. Oh life - I am still at bat - throw me one more thing...I dare you.... The boy is out of surgery. Yay!! I read the summary on line of the surgery they did. They tried to stent him two different ways and it did not work, so they ended up using a metal stent to hold his bile duct open. They also put a stent in the pancreas duct - I am not sure why? I did not get to talk to the doctor so I'm not sure what all the medical talk means at this point. All I know is he was sleeping in his chair when I left to come back to the hotel. He just texted me, "The pain is actually better!!" He was so excited. I know this isn't the big issue - the tumors and lesions on his liver and all - but hey - it's a baby step. We'll get past this and tackle the next thing as it comes I guess. Left foot, right foot... Just keep swimming...(please insert your positive and motivational insights here...) February 9, 2022 - First of all, for the record, I'd like to state that hotel coffee sucks. That being said, it still serves the purpose of 'moving' me as it were but pooping WITH flavor would be nice. Smile. I also notice that I've been feeling very 'strong' as far as being able to handle anything life throws at us, but if I read one kind message from friends I get all weepy. What is up with that? Someone said yesterday "you don't even know that the tumors and lesions are cancer..." and this is true. We do not. Any tumor or lesion in an area where they are not supposed to be is scary nonetheless. I am sure they were trying to be positive. I appreciate positive thoughts. Duh, I so forgot we have a generator. Having the power off for 8 hours shouldn't be a problem at all. Once again, may I stress my "DUH" factor here. I know, I have other things on my mind. There is a large pile of human feces right outside of the side door at my hotel. I have felt that way before...having to go so bad I couldn't hold it, but I would think the hotel would want to clean it up. Hell, I want to clean it up. If I get bored I may take a bag down and do that. As I always say, "If it is on the ground, pick it up..." even if it isn't yours. I am off to shower and go in to see Homer. I hope to snag a visit with the surgeon! Wish me luck Got to meet with three doctors today about Homer. They drew pictures of what was done to get his bile to drain. They were very informative. Tomorrow they are doing the liver biopsies they need to figure out what is all over his liver. They are doing them here at U of M since they have to sedated him some to get the biopsies. They drew a picture of his liver. It was covered with polka dots. Ugh. We SHOULD be able to come home after that is done. Results and a plan of action to follow. I just wanna go home. I actually miss Norman and his slobber. Homer misses Norman too. Homer ate today and he felt so much better. His feet are starting to swell, though, so I alerted his nurse of the situation there and I walked him around the floor. He needs to move. I scheduled the electrical box fix for next week. I am glad we have a generator we can use to keep the fridge and heater going while the power is out. I will be glad when ALL THIS CRAP IS OVER in general. Hahaha. Ugh. I have done so much walking around the hospital that my feet let me know it, but they are used to it by today. I use two elevators to get to Homer, so every once in a while I still feel like I'm on an elevator. There is an elevator at the hotel. Weeeeeee. Makes me feel tipsy. Maybe I will go down to the bar tonight and get a beer and order some food. On the way back to the hotel tonight I got my car washed as it was a lovely shade of white from all the salt. Now I can see with the back up camera again. It's the little things, aye? Seize the day! February 10, 2022 - This hotel must have a contract with the state of Michigan to house people in need or in transition. I've met a lot of interesting people here. Here I am lamenting about my life on my blog when there are so many other people worse off that us in life. They may be down, but many of them have spirits that shine. The lady I talked to this morning said she'd pray for us and she prays every day all the time. "Might not seem like God is doing anything, but he is - in His own time - don't you forget it! That's why you keep going. You can't ever give up." Smile. The family next door must have six kids in that room, but they've been fairly quiet and well behaved. At least they can go swimming for fun. We should be able to come home after Homer's biopsies late this afternoon. Hurray. It will mean I have to drive in the dark WHICH I HATE but at least we can free up a bed for someone in need of one. Thank you all for your kind words and support through all of this. Once we get the results from the biopsies we can then plan on our next adventure and move forward. I kind of miss Norma's slobber, I'll admit it. Once you have a Dane and said Dane works their way into your heart, slobber means nothing. (Except for the use of mass amount of towels for clean up.) Homer is missing Norman too a LOT. He has not seen him since last Friday. My youngest son who has been taking care of his "little brother" for us has sent tons of Snapchats of Norman so Homer can see him. Norman has been spending a lot of time in Todd's chair. I think Norman misses Daddy. The fun part will be getting Homer on a low fat diet. We're fluffy people - those who know us know we don't turn down fat often. However, to keep the bile flowing at a respectable rate in the boy - we need to keep the fat down so the liver and gall bladder don't over work themselves. Lordy, I'd hate for that metal stent to break free!! Yikes. I am also going to request that University of Michigan share how to properly administer anesthesia to my husband with our local hospital just in case. Seems like they would share, right? I have to laugh - the bathroom here has a huge mirror. Mind you, I've not seen myself in a full mirror since before my boob cancer. Dolly the cancer boob is pretty red and firm but my right breast falls to the floor like a sack with a rock in it. Hahahahahahaha. The only way to even the playing field on boobs here would be for me to be on my back. Still, it makes me laugh. I've used my breast as puppets in the mirror - I'm not ashamed to admit. Hahahahaha. Last night I got in the tub to soak. The tub is tiny and after I did get down in it, I worried about getting back out again. Smile. I managed. I will be packing up my crap soon and getting the car loaded. Check out is at 11. I will push it almost to then before leaving. Since his surgery isn't until this afternoon I don't want to get to the hospital TOO SOON. I love Homer, but a hospital isn't exactly my idea of date night, and I've already spent a LOT of money at their gift shop. Norman ate my cool ear muffs a week or so ago, and the gift shop had a pair. Woot! I have so much hair I really don't ever need a hat, but my ears get cold. Later on February 10, 2022 - I am afraid if I sit down for too long I will pass out, so I've been very busy since arriving home. I even fixed a GOOD cup of coffee and pooped on my own toilet which I consider a luxury at this point. My youngest son had the house pretty well cleaned up for us, bless his soul. He let us know how much work it is to take care of Norman by repeatedly saying "I don't know how you guys do it! I don't know how you guys raised three kids!!" Little does he know but his Mom is a Superwoman. (I just don't have the costume, unless you count my varicose veins as a cool emblem of sorts.) Norman went NUTS that we were home and was leaping in the air and practically knocking me over. While Norm was trying to kill me with his love, my youngest brought in all the stuff from my car. Again, a godsend. My oldest got home from his trucking week and ran to the store for us, too. It was awesome of my boys. My daughter would be here in a heart beat if she had a car and was able to be here, trust me. I have damned good kids. They told us we could come home tonight after his liver biopsy. They didn't tell us that he had to stay in bed as flat as he could for three hours after the biopsy. Ugh. We left University of Michigan around 7 p.m. My husband is a miserable man about now. He knows he most likely has liver cancer (we just have to be told officially, but everyone has been saying it is cancer of the liver) and he went through that awful pain and feeling terrible with the bile back up and he got through the stent surgery earlier this week and he has not slept well all week. He hasn't been home since last Friday afternoon. He is currently sleeping in his lazy boys, passed out to the world. I could set off a bomb and I bet he'd sleep through it. Norman is also passed out on the couch, happy we're back where we belong. I took advantage of the quiet and finished the load of clothes my son had in the dryer, washed another load an that is in the dryer. I scooped cat poop. I unpacked everything an put it all away. I paid some bills. I checked work, but it looked like my dear back up did stuff for me tonight. I am so damned blessed. As soon as I post this, I am sure I will crawl into bed and maybe cry a little and sleep. Sleeping in one's own bed is also a luxury we all take for granted. First, though - since I didn't take my tweezers with me, I may try to tame my beard first. That may take hours... February 12, 2022 - The wind chill here right now it eight degrees. We had all that snow last week and then we recently had wet snow, then rain snow, then rain, so now the yard and the dog pen is like an ice rink. I park as close as I can to the door when I get groceries so I don't kill myself bringing them in. (Hip surgeons in Michigan must be excited about this situation. So many falls will happen.) When Norman goes out to pee in the pen he looks drunk, his gangly legs slipping all over. (Actually, it makes me laugh when he's walking that way.) When I take him out to play, I go out the front door because there is still snow there (crunchy, but still snow and not ice). I did take Norman out to play with the neighbor doggies but was very careful where and how I walked. I can't afford to go down now... I fell asleep last night at six p.m. and slept until six a.m. this morning!!! HOLY CRAP. I know I needed that sleep, but my bladder was NOT happy and let me know, so I changed my sheets today. I also washed both of my comforters to de-Normanize them. (I should have taken a picture of the lint filter after drying said comforters - so many little Norman hairs.) I did another two loads of laundry on top of that. I took Norman to get his nails trimmed. I did dishes. I went to get groceries. I swept the floor and got down some cobwebs (which is funny since I had just talked to my friend Sue about cobwebs and how I didn't care, but the more I thought about it, apparently I did care. I didn't get them all, but enough to keep me happy). I worked for a while on line. I kept busy. Keeping busy keeps you from thinking too much. I didn't need to think today too much. I just made myself a nice cup of Sleepytime Tea to help me relax. No doctors called today with test results, but I am sure we know what we are dealing with here... Homer says he feel so fuzzy headed and he's not hungry and I have to force him to eat a little. The side where his liver lives gives him grief. We've done heat then ice to help ease that pain. He is pretty much confined to his lazy boy at this point. I am sure he's depressed as hell. I would be too in his situation. I have been trying to be upbeat and positive, but really - I'm not feeling it so much. I will keep busy though, and keep on keeping on. I hope to inspire him to try to move a bit more but after the week he had, I suppose he has every right to sit in that chair all he wants. This coming week is Sandy Self Care week. I go to the chiropractor on Monday, then meet my new cancer doctor on Tuesday. (The doctors at the Cancer Center all had to choose a hospital to affiliate with and mine chose the hospital I don't like so I switched to a new cancer doctor at my hospital.) I have not been massaging the lymph areas around Dolly the Cancer Boob so she's a bit swollen. I should probably work on that the next two days so he doesn't think she's going to explode. With all this happening with my husband, I totally forgot I had cancer. My cancer doesn't mean anything. It was a bump in the road. I just stopped to think when it was. I had surgery in 2018 and finished radiation in 2019, so it's been three years and four months. I hope I get the all clear that I only have to go for check ups every year. I am going to ask if I still have to take the anti-hormone pills but I doubt he'll let me quit yet. I hear tell they say like 5 years at the least. On Wednesday I have a dentist appointment to fix a broken filling. I feel so selfish for taking care of me, but that is the dumbest thing I've ever typed. I have to take care of me if I am to take care of other people. Friday is my husband appointment with the family doctor that I want to go to. (I think I have to go. I doubt he'll feel up to driving himself even by Friday. I lined up my youngest son to babysit Norman for that.) I kind of regret I have such a need Great Dane doggie that needs constant companionship, but then again I don't. I love that dog. He is like a little kid and I would have to arrange for a babysitter for a little kid, so really, I guess it's OK all around. I forgot to mention another humorous thing about my hotel stay. (Funny to me, at least.) We have VERY hard water in this house (and if you can't cut your water with a knife like mine, you ain't got good water). It takes a good amount of shampoo and conditioner to make your hair feel clean here. I forgot hotels have soft water, so the first shower I took I used the normal amount of shampoo I would use at home. YIKES. It took forever to get it out! Hahahahaha. I thought to myself, "I will have to remember that I don't have to use half a gallon of shampoo tomorrow" so of course I forgot everyday and went through this excessive mass of suds on my head over and over again. Still makes me laugh. Silly Sandy. February 13, 2022 - My cousin had to remind me about salt! Duh! I so forgot about using salt on the icy places!! I went in to my local grocery store and they were out, so I drove up to Meijer and got two bags, filled my car up with gas, and came home and began the aSALT on the ice at the front door area. Took until this afternoon to get it all melted away and cleared out. Then of course it snowed at least one inch if not more in an hour just a bit ago. Mother Nature reminding me I am but a parasite on Earth's skin. My husband at three meals today. Not 'real' meals - but he ate. This made me happy. He tires easily and is sleeping again in his chair. Norm and I took a nap today, too. I was feeling weird, trapped, odd, lost and if anything can fix that, it is a nap. It did help, I must admit. I would assume we get the call tomorrow from our family doctor about the test results. I was hoping it would be this weekend, but even doctor's have to have days off. It won't change anything if we know sooner or later. We just need a starting point and the beginning of a new adventure. I am not watching the super bowl. I am not a sports type person. (I do like baseball, but I played softball as a teen.) I will watch a science show and forget life for awhile. Side note - The kids always tease me because I mix up the boys names. I combine them - half of one name with the other name. When my youngest son was babysitting Norman for us last week, and he had his dog Watson with him, he started mixing up their names and combining them. Bwahahahah. "See!! See!! I told you it happens!" I love it when I'm right. February 15, 2022 - Yesterday I saw my chiropractor. He said, "You are STRESSED!" due to how my back and neck were all seized up. "Yeah, I am..." and I told him about what has been going on lately. He got me all fixed up. It was a relief. Today I had my cancer check up with my new doctor. I got to the cancer center early, so I called our family doctor to be sure they had a paper to sign up front for my husband to get his pain medicine. Our doctor and I had been talking on line about what Homer could take for his pain. He explained all the options and he wanted to go with something stronger and he suggested tramadol/Ultram. The receptionist said, "You don't get that unless you see a doctor." "You mean he can't just waddle in and sign something?" "No, you have to see a doctor." She saw that our family doctor could see Homer at 11 a.m. I said we'd take it, then I was stressed over how I would get back to the house and pick up my husband (and Norman) and get over to our family doctor in time. I was already at the cancer center, so I didn't reschedule, just went back to the room at ten and explained to the MA about my situation and got my vitals, etc. I sat there and sat there - it was 10:15 and I knew I couldn't get home in time if I didn't leave SOON. I was walking out of the room when my new cancer doctor walked up. I explained my situation and he did his best to hurry through the exam. He did do a thorough manual breast exam and said everything felt right and all was well. I really like the new guy. I said I hope that my husband gets him... I had texted my husband to be dressed and ready to go as soon as I pulled in the driveway. I got back to the house at 10:50, packed him and Norman in the car, and took off. We got to our family doctor right at 11 and in went my husband. Since this was a work in before the doctor left for the day (Doc had a half day off today) I figured he'd be in and out. This was not how it worked out. Norm and I drove around the parking lot for a while and we could still see him sitting in the waiting room. (Now it is 11:10). I took Norm for a ride around the neighborhood so he could hang his head out the window and sniff and pulled back in at the doctor's office and he was still in the waiting room. Norm and I went back out for a long ride around our little village and when we got back he was finally NOT in the waiting room. We parked at 11:30. Norman had lots to see, but my new car is smaller in the back than my other car, so the poor boy was rather squished. He finally sat down and then laid down for a bit. The doctor's office is right next to a school, and kids were out playing, so Norm kept getting up to see what the ruckus was PLUS he had to check out every person that passed the car. FINALLY my husband came out at noon. Ugh. I took him and Norman home, made Norman lunch, jumped back in the car to go fetch my husband's meds. When I was at the cancer center, the MA asked if I felt any stress. "Yes, I feel stressed." She too got the condensed version of my situation. They have to ask now if you are stressed, in any danger at home, or suicidal or ... so I skipped to the point and told her "I am stressed because of my current situation but I don't want to kill myself and the only danger I'm in at home is from my Great Dane puppy." She laughed. When Norm and I were waiting for Dad to get out of the doctor, I decided to turn on the radio for his listening pleasure. This did not go over well. He didn't like the radio, but while it was on I heard a commercial for a casino near us and Kenny Loggins was going to be there in April! I got so damned excited. Then I stopped being excited. I LOVE Kenny Loggins, but I don't want to go to a concert in a mask and be around a bunch of people who could give me cooties that I would drag home to my husband. He is in no condition to be sick now - or should I say 'sicker' than he is. I doubt I could stand two hours either, unless they know anyone who likes Kenny is an old geezer so there would be seats. I don't like his later work but I do adore his Loggins and Messina days and his early solo work. I want "Celebrate Me Home" to be my funeral song, I love it so much. I decided right then when Norman was looking for the voices on the radio that I didn't really want to go. Really. Really Really. Yet for a split second I was so filled with excitement and that felt good. I have not seen live music since early March of 2020 when I went to spend the weekend with my daughter and SIL in Chicago and we went to see Theo Katzman. Music is good for the soul. February 16, 2022 - The "Sandy Care Week" is done! I got to get adjusted at the chiropractor, I got a clean bill of boob health from my new cancer doctor, and today I got a filling. Ta Dah. I think to celebrate I will soak in a nice hot tub of water with an excellent bath bomb. I deserve it. University of Michigan called today with my husband's biopsy results. The doctor seemed frustrated a bit. She said there was so much cancer they really could narrow it down to what type it was, but it was everywhere on his liver. She posted the results on line. I researched some things and gave up. I will wait for a cancer doctor to explain it all and help us decide where we go from here. We see our family doctor tomorrow and his new cancer doctor next Friday. Getting him things to eat that he can tolerate is hard. He asked for chef salad, so I got the makings for one and fixed him a tiny one. He didn't finish it but he said it tasted so good. I got a bunch of Boost so he doesn't starve to death. My husband is a big boy - nearly 300 pounds, but he's losing fat fast. His stomach looks so bloated and he's very sore. Thankfully the doctor did get him a pain pill he seems to be tolerating well. So now, we wait and see and I will be the best cheerleader that an old woman can be. I have not told him 'we've got this' or anything like that. I don't know if we've got this. It depends on so much. I will, however, remind him that our only choice is to go forward from here. February 17, 2022 - Lunch time - I ran in to work this morning to switch out back up tapes, and EVERYWHERE there are mini-lakes in fields, yards, etc. Out front of our house is a huge lake. My neighbor has one on the side of his yard. The melted snow/ice has no where to go. BUT THERE IS TONS OF ICE STILL LEFT. When I took the burnables out to the burn pile it was a treacherous walk. I watched Norman running about and took his path. He hates ice too, so he found a safer way. Bless his big old heart. I cannot afford to get a broken hip right now. Before Homer got so sick, he managed to do most of the laundry for me since I work. I have had to take over all chores now, and you know what? NORMAN AND I MAKE A LOT OF LAUNDRY. My husband doesn't make any dirty clothes except for pajamas twice or so a week, but ME and NORM!! There are so may drool towels on a daily basis and turns out I am a load a day woman! When I bitched about how much laundry I produce he said, "Welcome to my world." hahahaha. This also goes for garbage - who makes all the garbage in this house? ME and NORMAN. Good to find out. Hence the reason I need a wife... Tomorrow is a visit with the family doctor. I have questions. If the weather is too much or if my plow service doesn't come, then I will call the doc office and request a video visit. My youngest was set up to come over but we are going to play it by ear based on the road conditions tomorrow morning. I called and made an appointment with a lawyer that will be on Monday. I had needed to get stuff in order for a long time but never did it. It's time we did it. Even if I go first, my husband needs to have stuff in order and then I don't want things to go through probate for the kids. I have put this off for far too long. We really don't have much, since I am not a materialistic person, but what we do have needs to be all lined up. I wish I could find something my husband could eat. He eats so little. Thank goodness for Boost! Boost fixes everything. I have suggested TONS of things I think would bring him comfort. Nope. I will bring this up to the doctor tomorrow. **Please not in the post on 2/16 I said cancer was everywhere - I didn't finish that sentence. It is everywhere in his liver. There is none in the pancreas or I am sure it would have been mentioned at the University of Michigan. Just wanted to correct my faux pas. February 18, 2022 - Ah, another day of excitement. I am not sure how much more I can take! We went for a review with the family doctor and he gave my husband a stronger pain medicine. His stomach is distended and his liver of course hurts, so better drugs were required. (Your liver is a football sized organ - there is a lot there to hurt.) I came home and worked then got him some lunch. (He wanted a scrambled egg with a little ham in it and he ate it all!) We have wind advisories for tonight, so my husband wanted to review with me on how to start the generator in case we lose power. We went out to where the generator is and we filled it up with gas, and we noticed the gas line was spewing gas. A crack in the gas line. Ugh. My husband tried to fix it but he's so damned shaky and weak, it was not going to happen. I got him back in the house and into his chair then I texted my poor neighbor who fixed out water heater and just came undone all over in text. "God thinks my name is JOB and He is TESTING ME!!" Sigh. My dear neighbor is out there working on it now. Bless his heart. My neighbor could be a murderer, but all the stuff he's done for us would qualify him for heaven by now... The generator is fixed. I HEAR IT RUNNING! Let the wind blow. My neighbor showed me how to start it so I should be all set in the event we lose power. My husband wanted a plain boneless/skinless chicken thigh for supper so I ran in to town to get chicken. (I wanted to fill the gas cans too, so I kind of had to go.) I got myself another container of Mexican Street Corn dip. I love that stuff. That will my after dinner treat. Yum. I fixed the thighs and we're having them for supper. I gave him some mashed potatoes too, since he really needs to eat a bit more. The Oxycodone seems to have helped his belly pain. I am treating myself to a Pepsi, too. I shouldn't drink pop because I'm watching my sugar, but sometimes you have to just cut loose. Smile. I will probably drink 1/2 of a cup and call it good. What I really want is mass amounts of Miller Lite - way more than half a cup... February 22, 2022 - On February 10th, my Mom would have been 100 years old. I was busy on that day with my husband at U of M. I thought of her, though. We used to always have ice storms around her Birthday. I don't think you ever stop missing your Mom. With my sister passing recently, I am sure my nieces are in full MISS MOM mode. It gets less 'achey' as time goes by, but the missing part will never stop. Today we should get out fuse box changed out to a real electrical box. We have 'til March 1st or get our house insurance cancelled. It is due to rain all day and maybe have some icy rain included, so I'm not sure if they can do it or not. We'll see. I will be glad when it is done and I can remove that worry from my brain. We talked to a lawyer yesterday to get the proper paperwork going for Power of Attorney (for healthcare and for all other things) and a will and other stuff to make sure things are good in case. That was a huge relief off my mind, too. I put that off too long. I am SO happy that is in process. I am also so happy I am not materialistic and have next to nothing - makes the whole process much easier! My husband's liver reminds him constantly that it is pissed off at the world. Sigh. Friday is the first visit with the cancer doctor. I want to know what kind of cancer it is. I want to know the 'stage' of the cancer if they can tell. I am sure they will order a full body MRI to see everything. I do know the type of cancer he has had to come from somewhere and did not originate in the liver. I am convinced it is from that stupid tumor blocking his bile duct. Just seeing that thing in a picture made me think he was the evil one. I have questions. I want answers. Waiting sucks. I have been trying to get up and move more just so he keeps his leg muscles worked a bit but he seldom does it. Norman "misses" playing with his Dad, and will go up and plop down on his lap (which is his stomach) and my husband gets so upset because it hurts. Norm doesn't know. When my husband was sleeping yesterday Norman went up to him and stood there for a full minute or two sniffing his stoma and his breath from there and just staring at his 'Dad.' February 23, 2022 - My daughter bought my husband an Apple TV gift card so he could finish watching the available Ted Lasso shows. (That is a DAMNED GOOD SHOW. Amazingly good.) Apple is very proprietary so you need an Apple device to set up an Apple TV account. My husband has an IPhone, so I was able to do it eventually with his apple account - but not after fighting with it for an hour trying to use my own ID and PC. (It was, of course, worth it to watch Ted Lasso.) We have a new electrical box! Yay! They had an issue getting the old one out since it was in there with four inch screws into the cement brick part of the walls, but by golly, they did it. They had to drill through the cement again for the new power line as well. Norman was quite confused about all the coming in and and going out of the electricians. He was upset by the drilling of the cement. He survived. Once they bring me an invoice and paid in full notice, I will submit the new pics and that to the insurance agency and get them off our back. ONE MORE THING off the worry list. I'll take it. The last three days have had high temps in the high 40s to low 50s. I almost got stuck in my drive yesterday in a mud vortex, but it was warmer. Yesterday morning when I was standing outside with Norman waiting for him to take care of 'business' I looked up and talked to all of my friends and family that have departed this earth and said, "OK, so you guys are energy now going all over the universe and all, but as a collective group of energy - could you hold off the heavy rain they say we're supposed to get until AFTER the electricians are done - just over the house would be fine..." It sprinkled throughout the day, but the rain was never heavy and did not interfere with the new electrical box installation. I was happy for that. I left the house after work to run in to the store to fetch things for my husband and on the way IT JUST POURED. It made me laugh. "Thanks, Guys! You did it!" I've got friends in high places. Smile. Today however we're back to wind chills of 9 degrees. Bipolar Mother Nature needs a hug. When I got to town, I stopped at the local hardware store and got another smoke detector. I feel better with a new electrical box, but the wiring in the house is like 50+ years old, so I worry about that - will then new inbound boost in power start fires in the wires? We'll see. I just felt better getting another smoke detector. I went upstairs and tested the one up there, too. At this point in my life I wouldn't even be shocked if there WAS a fire. Miss Sandy Morbid. My husband keeps asking for certain foods which I gladly go fetch or fix, but then he can't eat it. I have to stop reacting and ask him if he REALLY wants it or it just sounds good before I run off to buy it. Sigh. I have a lot of uneaten food in my fridge that turns into my lunch and supper. His mainstay is a peanut butter banana Boost smoothie. Friday can't get here fast enough. (Not that Friday will bring any magic answers but we will at least get a game plan going.) I have to bundle Norman and my husband up tomorrow early to take him in to the local lab for a blood draw. A wee adventure, although I am sure he could think of other things he'd rather do to get out of the house, though... February 24, 2022 - There are SO MANY robins out in the neighbor's yard. I think they like his one tree - possibly a crab apple tree? I thought I heard them the other day, but now you can SEE THEM EVERYWHERE. The red winged black birds are back too. Normally they are just PIGS and clean me out of birdseed, but now they are eating the huge pile of bird see the other birds didn't want all winter, so I am letting them clean that up. Win-win. My cousin mentioned something to me in an email that inspired me to write back to him back and express my feelings over women's bladders (especially if they've had kids) and I waxed poetic to him about it and also stated that if I ever get to talk to God in person I was going to question the whole bladder design - I think they gave that job to some young, new intern angel who had no clue what to do - so we're all stuck with faulty bladders that never listen to us. Since I typed that letter, all I've done is PEE and in great quantities. Don't dis God, apparently. You pay the price in Poise pads.... I think I've spent more money on groceries in the last three weeks than I have in three months. Trying to find things my husband can and will eat is nearly impossible. He tells me what he wants but then he can't eat it. Poor Dude. I did find peanut butter powder, though!! He usually ends up having a banana, peanut butter, and Boost smoothie - but lately the peanut butter has been hurting his gut. I will try the peanut butter powder next time. Practically no fat and that should help a lot. Tomorrow is the day. I hope he gets a plan in place. I am sure they will have to do a head to toe MRI, though, to find out if the cancer is somewhere else (since they've said in the biopsy test results that it is from somewhere else and not just 'liver' cancer per say, it has to be somewhere that shared with the liver.) I have my money on that damned turd looking tumor that blocked his bile duct... Hopefully that is it. The more confined it is, I think the better. The 'no plan in place' is kind of killing us both, nerve wise, that's for sure. He had blood work this morning, and the results came back in already. His white blood cell count is way elevated and the Doctor said if he got chills or a fever to let them know right away. I have notified the doctor... February 26, 2022 - Well, the deed is done. My husband had his visit with his cancer doctor. I like this doctor. He went through all the scans and reports with us. He showed us the liver view - it is just covered with lesions and it's also in the the lymph glads near his liver. It is 'cancer of the liver' or secondary cancer since it it didn't start in the liver. He showed us Todd's stomach (no cancer) and pancreas (no cancer) so he is pretty darned sure it is from biliary tree/bile duct since that is where a bigger tumor resides. Looking at the scans showed SO MANY LESIONS all over his poor liver. So many... He also told us that it is Stage 4. Without chemo the doctor said maybe 4 months. With chemo - he could last a year. The end result is the same, however. Of course my husband is mad. He said, "No damned chemo...let's just get this over with..." That was last night. I told him we'd discuss all of the technical info on Saturday. It's Saturday. We will discuss today. A person has a right to at least try. I told him, "Maybe you will be that one in a million it reverses and there is a miracle, you don't know!" However, we both know it's not going to 'reverse' any time soon. I told him about my BFF's sister who, before she died, regretted having chemo since her life was miserable from it. I also told him about our friend Sue's brother who never regretted having chemo as it gave him extra time on Earth. The decision is hard for him, I know. I want him to know all he can know before he chooses. No matter what, he has to get his electrolytes in balance before he could even start chemo if he chooses that. The four hour infusions to do this start next week. Twice a week for two weeks. So there we are. Not much else matters to me at this point in life. I will vent here. If I say something that offends any of you - well, it is what it is. I no doubt will with venting. Forgive me ahead of time. Now, some random thoughts out of my brain... This morning there was a red winged black bird convention in my neighbor's front tree. I love their calls and chitting but as I've stated before, they are pigs when it comes to bird food, but still - I appreciated all the chaotic chatter. The robins are still out in force. There is hope for spring. When I walked out in the dog pen with Norman this morning, a mouse ran off to the nearest flower pot to take cover. This is funny because my son was just complaining about the mouse invasion in his house. Tis the season. I have tried to learn why Russia wants Ukraine back and I'm still really not sure. I need someone who is more politically smarter than me to explain whey they feel they need to use force to take Ukraine. Ugh. All war in any form always confuses me. I don't understand that type of aggression. Hell, I don't even understand why our country is so stupid - how am I supposed understand world things? In this case, I choose ignorance, please. If it were me I'd put Ukraine and Russian leaders in a room by themselves until they learned to get along together. My husband sat in my desk chair this morning and gave some lovin' to Norman who's been missing his "Dad" something fierce. It was sweet to see. Norman is confused as to why "Dad" has changed. Aren't we all. Homer wanted some malt o meal for breakfast (a good sign to me, since he's rarely in the mood to eat) so I fixed a bowl. He got one bit down before it all came back up. With his layrngectomy from 2020, his throat is not longer connected to his trachea which means all of that has been rebuilt. There is no stopping acid from refluxing upwards from his stomach. He had drank two Boost drinks earlier in the morning and there is no room now in his stomach for malt-o-meal, so up it came. Sigh. I need to run to the pharmacy to get more pain meds for my husband. Have a good Saturday. February 28, 2022 - My husband has decided he has to fight this cancer, so we are GO for chemo treatments. The amount of appointments coming up is rather daunting. I was a baby and cried a bit this morning while I was coordinating Norman babysitting with all the trips. My youngest son is an angel for being the most available to help. I pay him, though - since he's losing work hours for us. My daughter is taking the 7th, so that is good, too. We have to run to U of M next week as well to get his TEP changed out. He is worried that if he is nauseated by the chemo that it will ruin the one he has. Our tech at U of M said that he'd have one less thing to worry about if we switch it out before the chemo starts, so she overbooked herself for us on the 9th just for us. I love that woman. She is a saint. He get his chemo port in on the 14th, to make it faster/easier to get chemo treatments. The first chemo treatment, however, will be normal I.V. I don't think he'll enjoy that much. I can at least work from the Cancer Center while he is going through the chemo and infusions, etc. (I need to keep the insurance in place about now, don't you think?) It is now evening and I don't feel so overwhelmed anymore. All the running and the like has registered in my brain and I have accepted it. It is what it is, as they say. This is the trip we'll be taking for Homer and I will be the best cruise director I can be... Tomorrow is our 42nd Wedding anniversary. Wow. Just wow. Many of those years were rough - up and down and under, but here we are. Maybe we don't have another year left together. Maybe we do. Maybe I'll die first and he'll be able to get super new treatments with my life insurance and live forever. Maybe, though - we'll just make it through tomorrow. That will be the goal... March 3, 2022 - Last night I was so frustrated I vented all over my BFF and my daughter. I apologize to both. After a night's worth of sleep, I feel much better. Sleep can help clear your mind. (Putin needs to take a damned nap, apparently...) Yesterday was my husbands first infusion to help balance his electrolytes. So this is how the process will go going forward: He'll arrive to get his blood work (they have to do a comprehensive metabolic panel on his blood every time he walks in that building) then wait for a while, then start his chemo. That takes a few hours. When that is done he will have to sit there and get his infusion to fix his electrolytes. So all total, he will be there for about 6 - 7 hours on those days. I will be able to work from the Cancer Center while I am there, thank goodness. My daughter is taking March 7th. Then we go to U of M on the 9th to get his TEP replaced since he's worried the older one will fail anyway if he pukes from chemo. (Our tech at U of M for this process is an fricken angel to work us in.) His first official chemo day is the 10th. He gets a port installed on the 14th, that should ease the issue of finding a vein. He had a vein blow up yesterday while they were taking his blood for testing and his hand was swollen and puffy from that. I vented to my daughter and BFF because people have volunteered to help, but how in the heck am I going to ask someone to help when they have to haul him up there, grab him a wheelchair since he doesn't seem to want to walk much, find something to do for most of the day, then haul him home. I could never ask anyone to do that, but as my BFF said - people DO want to help. When they offer help, they know what they are offering. I may call in a few of those offers eventually. Just the fact it was the first day and reality set in - well, that threw my poor brain for a loop. The cancer center locks it's doors at 5:00 p.m. You can get out, you just can't get back in. There were three people besides my husband that went past 5:30. We left at 5:30. I wheeled him to the doors and he did walk to the car, thank goodness, but he left his favorite hemorrhoid pillow on the wheelchair. I thought of that just before we left. There is no number to call to ask someone to come down and activate the doors. I tried the main hospital info line who sent me to security and security said they have no clue who to contact nor have any numbers and threw me back to the main desk who suggested I call the Cancer Center and press the button to leave a message for the doctor on call. UGH. I knew one of those people had to leave sooner or later, so just stood there at the glass door, staring at the damned pillow for 20 minutes. One lady left and I assured her I wasn't there to attack her, I just needed my husband's pillow and I grabbed it up real quick and scampered back to the car. Trust me, I am calling today and getting the nurses station phone number for the chemo floor... When we got home my husband realized he didn't have enough pain meds to last all night. He asked me to email the doctor. I did. I am SO MAD at the doctors and pharmacies who for years abused the use of oxycodone and now people who legitimately need it have to go through and practically sacrifice a goat just to get several days worth of it. You have to sign a paper stating you know the issues with this drug, then the insurance has to approve you to use it and not abuse it, then they only give you a small amount. THIS DRIVES ME NUTS. WE'RE NOT GOING TO SELL IT ON THE STREETS, FOR GOSH SAKES!! Anyway, I called the family doctor's office as soon as it opened and talked to my favorite receptionist to ask her to ask our doctor to read his messages and get a script over for Todd as soon as possible to our local pharmacy. Sigh. He is literally watching the clock now. Today we will discuss my need for him to be responsible for some of his own issue himself. Watching the pain med situation is one of those things. Trying to walk more is another. I will also ask him to NOT assume I have everything (such as roid pillows and the like) when we enter or leave buildings. He can help me out there... I can't take away what is happening to him but he can help out the journey a bit by participation. So far it's been like he's a two year old that goes limp and I have to drag him around. This will need to end. He survives mainly now on Boost and Boost smoothies. On Tuesday I broke the glass container to my blender so at lunch I ran to the store and got a new blender plus a cane. He gets so 'tippy' I figured he could use it. He also wanted an air fryer so I could try making him lower fat french fries and the like if he feels up to solid food. I guess the way to get new appliances is to have someone in the house get cancer, huh? Smile. March 5, 2022 - I had a desire to sleep in on this Saturday morning, but I also have a needy, spoiled Great Dane. He started attempting to wake me up this morning at 4:30 a.m. He stood over me, pinning me to the bed (which defeats the purpose of me getting up and all, since I can't because I have a gigantic dog holding me down.) I managed to get him to lie back down and I made feeble attempts to itch his belly so I could doze a bit longer. That lasted until 4:50 a.m. when he was back over me being all Norman needy. I was mad and grabbed his tail to pull myself up and we got out of bed. Sigh. I let him out and stood there in my nightgown being mad while he did his business, and there to the west was a fireball! I have seen one other big one like this several years ago. This one was green as well as the first one I saw. Quite cool. I came in and reported it to the American Meteor Society. (I would like to state for the record that for a split second when I saw that fireball, my first thought was nuclear war and Putin being an ass and all. It is sad we have to have that in our heads - the real fear of a nuclear event at the hands of mad men. Sigh. Why do the masses have to pay for the whims of the few?) I believe my kids will be here today. I know they want to see their Dad. Their Dad was not the best Dad when they were growing up. He didn't participate in events and the like - mainly he worked and slept a lot and was grumpy. He did, however, fix things for them when the need arose and rescue them when their cars died when they were in their teens and even as they have become adults. They love their Dad. I will express more fear here... what if my husband gets sick sick on top of being sick with cancer? There is no way I can protect him from all germs. One of my dear friends wanted to stop by for a visit and I told her 'no' because of this fear. Duh. I should have let her come over. My mental health about now is as important as his physical health. I can't isolate him from the world. Covid made us very scared of EVERYTHING so I understand why I feel the way I feel, of course. I am tired of feeling that way... My husband asked me to email his cancer doctor about the fact he has constant 'sulfur' burps. The response was, "Unfortunately, this is the progression of the disease..." I also got him in to the family doctor yesterday afternoon for his bed sores. Our doctor said most likely the sulfur burps are a result of the stent in his bile duct. They sent a script to our pharmacy for a cream to use on the sites of his sores. I brought my husband home (and Norman, since he had to go too) and left them here and went back in to town to get his prescription. They had JUST gotten it when I pulled up to their drive through and said it would be at least 15 minutes, so I was forced to drive to the little town next to ours and get a Wendy's Chocolate Frosty, of course. My sugar has been normal human numbers - so I felt like I deserved a treat. I had a moment the other day where I cried worrying about the fact that when my husband gets 'bad' - would I have to find a new home for Norman? Norman is needy and doesn't understand that my husband is sick and NORMAN IS HUGE. When it gets to the point where I need nurses on site from time to time and the like, WHAT ABOUT NORMAN. I can't bear to give him away, I really cannot. I am sure it will work out, as things in life normally do... Today is my Mother-in-laws birthday. Even though she's left us here on Earth, she is always on my mind. We have a wall clock she gave us years ago, and the pendulum sometimes works but mainly doesn't. The last few weeks there are spells where that pendulum just whacks the heck out of the clock like it's mad at life. I always tell my sister in laws that 'Mom is back!" when the pendulum goes nuts. I expect it will kick in here soon so Mom can tell us it's her birthday. Smile. My sister is always on my mind, too. I so miss her to talk to... I am able to talk to my nieces so that is a huge help for sure. I told them about the other day at the local grocery store - an older (than me) lady came up and asked me where the popcorn was so I walked her around to the other side of the aisle and showed her, and she said, "I knew you'd know, you used to work here." I told her that it wasn't me, but my sister who used to work at that store. I told her about my sister's recent passing and how I was honored I looked so much like her. I see my sister every time I look in the mirror... I think what life boils down to is enjoying your friends and family and the fireballs and the sunny weather and the slobbery dogs and all of the stuff that makes up life AS MUCH AS YOU CAN WHILE YOU CAN. I already knew this fact but I appreciate it more every day. March 8, 2022 - It is the end of a very long 39 hours. On Monday I woke up at 5 a.m. to begin my broadcast day. I was looking forward to it. My daughter was going to take my husband for his electrolyte infusion in the afternoon. I had a 'free' day to just work. I was excited. Well now, funny how things change... My daughter took her Dad up to the Cancer Center and he had his blood work done. We have the MyChart function for our hospital and doctors. It posted new blood work. I looked. "Ut Oh..." His bilirubin was through the roof again. Just as I saw that, Chelsea said, "The doctor wants me to take Dad to ER since his blood work is wonky..." Ugh. Something was going wrong with his stent. He had been feeling just terrible for the last two days. I can see why now. I'll be damned if I can see his color changing until I've been away from him for a while. I should have seen this coming... My daughter took him over to ER. Of course, ERs are always FULL. She stayed until about 5, then came home to bring my car and let me go up. (After I left the house, she cleaned up the house very nicely. Very kind of her. Her brother came to stay with Norman. I have damned good kids.) My husband was just very miserable when I got in to ER. At least he was in an ER room. That is a blessing. He has a suction machine to vacuum out his stoma, so I'm sure they don't like people just sucking snot in the lobby out of a hole in their neck. The doctor came in just as I got there and she said that they had been on the phone with University of Michigan doctors and they wanted him to transfer form our ER to the U of M ER. "I'll go arrange transportation..." she said. "No! I took him last time this happened. You won't find anyone. I'll sign off on him. Just discharge him so we can go!" So they did... We went home first. My husband, by then, looked like he wasn't going to make it ANYWHERE. I threw together a suitcase and things he'd need and I reserved a room for myself a a hotel in Ann Arbor and my son loaded up the car and off we went. (I SO forgot to pack my husband more clothes. Ugh.) On the way to U of M, he said, "I can't do this again - this trips are too much..." I would like to state for the record that I HATE DRIVING AT NIGHT. Light refracts off my de-cataracted eye and I just HATE IT. Homer slept most of the way, which let me concentrate on not killing us both. As my friend Linda will attest, it's kind of sad when you get to know a place like Ann Arbor and the U of M hospital so well that driving to it and through it feels like you are 'home' - sigh. I pulled in to ER. They plopped Homer into a wheel chair and took him in. I gave another guy my keys and off he went with my car. Zip. Gone. (I got a ticket with my valet number on it, though.) We checked him in and I had to go upstairs to wait. There were no extra people allowed in ER. It was quite full. SO MANY VERY SICK LOOKING PEOPLE. I had taken a bag of his stuff which included his phone upstairs with me like an idiot. After two hours, I went back down and told them I was going to leave but I needed to give him his stuff. They led me back to him. He was squirreled away in a back hallway next to a table. At least he was isolated. He looked so sad. It broke my heart. I left him there to go check into my room at the hotel and I cried. By the time I got my bag into my room I was just so so so tired. I checked work first, then tried to sleep. I couldn't sleep. I tossed n turned for four hours. I have also been having pain in my right ankle - it locks up and the pain shoots all though me. I had it worked on Monday morning and my chiro found a bone out of place and he popped it back and it felt pretty good most of the day yesterday, but now it's back to being a vengeful creature. Sigh. Right now I have it propped up on a garbage can with a bag of ice on it. I got up and worked on line until 8:30, then just tacked my hair up and went up to the ER again. He was at least in a room. He has had hiccups for two days now and I found him in there making hiccup noises while he dozed. I had missed the consult with the hospital doctors. Ugh. They wanted to go back in and try to fix the stent - or clean up the stent area. He had a sonogram last night and a CAT scan. They could see there was infection in there around the bile duct. He had to wait for a room. I told him, "Honey, I can barely walk and I'm just so tired - I'm just going back to the hotel room, OK? I can't help you here." (Plus, he was mainly dozing off a lot.) He told me it was OK to go but you could see it in his eyes that he didn't want me to go. Ugh. I had signed up for text alerts on the boy - so I knew when he was assigned a room this afternoon around 4 p.m. I went back up tonight around six p.m. to kiss him goodnight. He was so happy I was there. (He immediately fell asleep, but he was happy I was there, I know that much.) I talked to the nurse and they want to do the surgery tomorrow. I have no clue when. They have him on an antibiotic drip as well as a saline drip. (His sodium levels are way too low). I read the results of his CT scan, and it looks like some of the lymph areas were it has metastasized where a bit bigger already - but his stomach, lungs, pancreas, stomach, and spleen were all cancer free at this point. Apparently the liver is just covered all over now with 'lesions'... So now I am ending my broadcast day that started yesterday at five a.m. I will turn on a show I know will lull me and see if that helps tonight getting to sleep. I limped into a local Meijer store to get a little fan so I'd have white noise but they had NO fans. I will use Forensic Files or something like that as white noise instead. Tomorrow has to be a better day, right? Has to be. March 10, 2022 - I am waiting for my breakfast from room service, then I'll pack up and head out. I only reserved this room 'til today. If my husband has to stay another day, I'll move to a different hotel. This one is not my favorite. It's more expensive but lacks the kindness I got at the other place from last time. I will call that place if I have to spend one more night. I snagged the front desk fan last night and used it as white noise in my room so I could sleep better. I have to remember to bring a fan with me when this happens again. This place has a smart toilet - meaning it knows when you are in the bathroom and automatically shoots out a cleaning spray and warms the seat. Spooky. It also has a bidet in the toilet part but I never did like bidets.... He had stent surgery yesterday afternoon. The surgery took longer than the first time due to the fact they had to clean out his bile ducts/old stents and replace them. They added one more further up in a duct as well. When we were in pre-op yesterday I was talking to the one nurse and he said, "Yeah, this happens. You usually have to have the stent fixed every couple of weeks..." I was so upset! I didn't know that. I made them get the surgeon after my husband was in recovery to ask about this. "Yes, they don't stay in there long...normally you just need to stent the ducts and you drain and all is well, but in your case he has tumors causing issue..." UGH. So this will either be a regular thing? I also asked him if he couldn't just put in a drain tube to the outside and I could change the bags. He said that is a very real possibility if the stents continue to fail as they have. I would like to stress the UGH part again... I am going to insist that they teach our local hospital about how to take care of this... I am eating my breakfast. I am starving. They brought some kind of berry jelly to use on my toast. I think it is good, but I'm more concerned with shoving the scrambled eggs down. Last night when I left the hospital I drove to a DXL Big and Tall shop to get his more sweats and shirts. I had totally forgot in our rush to pack the boy clothes. The sweats he has now are in dire need of being washed. I really hope he can come home today. Really Really. I just got said berry jelly all over the jeans I am wearing. I am glad I have a back up pair! I have no clue where we will go from here in my husband's journey. (They call it a journey, but it more like the dude is being dragged naked behind a horse on acid through shards of glass.) Sigh. One day at a time, I guess. March 11, 2022 - It's really still the 10th, but by the time I'm done typing I am sure it will be past midnight. I need to vent before I try to sleep. The week has been stressful, to say the least. I've been trying to keep up with work and my husband. By this morning he was calling and texting constantly "Where are you?" so I finished up what I could for work, checked out of my hotel room (since I only got it until Thursday morning) and went up to see the boy. When I limped my way to his room he just went to sleep. I am sure knowing I'm there is a comfort, but I get frustrated as I could have worked longer if he was just going to sleep. His sodium level was still lower than they wanted it to be before sending him home. He has a low grade temperature as well. They filled him full of IV saline and alternated it with IV antibiotics. The first wave of doctors didn't want him to go home today unless his sodium level came up. He was just miserable there. He is just miserable in general. I limped down to get a sandwich from the cafeteria and went back up to his room. I was eating it when the nurse came in and said, "You are not supposed to be eating in the room - you can go to the cafeteria, since up here you have your mask off to eat and we can't have that. The first time is just a warning and then we would get security involved..." I started crying. I have drank and eaten there all week and not one nurse said one damned word. This was a very young nurse who was very full of herself. I am glad she follow rules but she said that at just the wrong time and it was the straw that broke my emotional back. I threw the sandwich in the garbage along with the orange juice I had purchased. The nurse said, "Well, you could have gone to the cafeteria!" and I looked at her and cried more. I upset my husband by crying. I wanted to shout at her, "YOU HAVE NO CLUE WHAT I'VE BEEN THROUGH THE LAST TWO AND A HALF YEARS WITH HIS THROAT CANCER AND NURSING HIM AFTER THAT AND NOW THIS!! ALL THE SUPPOSITORIES I'VE HAD TO SHOVE UP HIS BUM AND ALL THE CLEANING UP OF HIS BUM AND ALL THE RUNNING AROUND AND PAYING ALL THE BILLS AND DOING ALL THE SHOPPING PLUS WORKING FULL TIME AND DEALING WITH INSURANCE AND DOCTORS FOR HIM AND ..." Well, you get the idea. I had a mini break down. When she left I still couldn't stop crying so I told my husband I was going to go to Meijer to get a supply of his Boost before he got released and I left. He texted three times on my way there and called three times. "You are coming back, right?" I got my wee breakdown out of my system on the way to the store. I limped through Meijer and picked up his Boost and purified water for his vaporizer. I drove slowly back to the hospital and got my head re-organized. She was just doing her job and I was just very tired, stressed, and did not need to get chastised by anyone right about then. I survived. I limped back to his room and sat down and slept a bit in the chair while he slept in his chair. At four p.m. one of the doctors came back since his blood work just showed up and he said it was still not where they wanted it but if we got him to his cancer doctor to get infusions then he would release us. They called in scripts for him on antibiotics, too, that I will have to run and get when the pharmacy opens up tomorrow morning. Then the doctor mentioned that they found masses on his lungs as well during the scans but I did not hear that nor read that in his on line scan reports earlier! I thought it was all clear besides the liver cancer and the bile duct tumors!! The doctor said he had discussed this with my husband. My husband did not remember having that discussion. Sigh. The doctor thought check out process would take about an hour, so I packed up all of his stuff and hauled his stuff out to the car (slowly). Then when all the stuff was done for release, I plopped him in a wheel chair to push him out to the car (slowly). I was grateful for that chair to lean on, to be honest. I am calling my chiropractor's office the second they open up tomorrow morning and demanding I see someone. I can't keep on going on like this with all the pain in my ankle and leg. When we stopped at a rest stop to pee, he had to have help into the place and I was worried he would fall so I just took him into the women's bathroom with me, got him on a toilet, and then I went. On the way out he said, "I'm going to have to have a walker..." We have a walker from when he had his layrngectomy. I called my son (who babysat Norman all week for us) to ask him to go upstairs and bring down the walker. We'd need it for getting Dad into the house. I believe I mentioned this before, but I HATE DRIVING AT NIGHT! When we got home I made my son bring in all the bags of my suitcase and the jugs of water and the cases of Boost. My husband asked me to get his vacuum set up (he has to suction out phlegm from his stoma from his lungs). He decided to try to make the legs on the walker taller, and ended up breaking it somehow. He demanded I call our neighbor to come fix it. It was almost nine p.m. I told him I would call him tomorrow and he said HE NEEDED THAT WALKER OR I WAS STAYING UP ALL NIGHT TO GET HIM TO AND FROM THE BATHROOM. I called my neighbor. He said he would be over soon but he was at a party or a friends house or a bar - I could hear in the background. As soon as I called my neighbor to come fix the walker leg, my husband fell asleep. Plop. Without his fretting over it, I fixed the walker myself and let my neighbor know. I've completed a hot soak in the tub to relax my leg muscles and now I am icing my ankle. I am afraid to leave him alone by going to bed, so I'll try sleeping in my lazy boy but I don't like it. I want to sleep in a bed. Norman is in bed waiting for me. Norman will live. I may not. OK, so this is really the 11th - I did end up going into my own bed last night once I saw my husband could manage (kind of - with his walker) getting in and out of the bathroom (after I moved the rugs out and the side stand and laundry basket.) However, we had a step up to the bathtub that was going to have to go. He also wanted a toilet extension thingy to make it taller for him so he didn't have to strain so much to get off the seat. I called our local medical supply company and bought one and asked my dear friend Sue to go down there and get it for me. She did and I adore her for it. I was going to install it, but I couldn't get the seat off. My husband said to send a message to our youngest son, who is a 'house flipper' guy. I texted my son and asked him to come over on Saturday to install that seat for me and on his way pick up a grab bar and mount it on the wall next to the toilet. My son texted back, "Do you want me to do it today?" OF COURSE! He came over and removed that step, installed the toilet booster seat, and installed the grab bar. Bless his soul. My husband just woke up a bit ago and said out of the blue, "That was a f&*#ing nice job he did in there..." then fell back to sleep. Hahahaha. I must say that the booster seat makes it so I will have to prop my feet up on a step to potty, other wise my legs will just dangle there. I am glad it works for my husband, though. Now, if he would stop sleeping on the toilet when he gets in there... Ah to sleep, perchance to dream - and no doubt my husband has been doing a lot of that today. He said earlier his pain was not too bad today. Well, I found out why! In the hospital they were giving him two 5 mg. pills of oxycodone every four hours for his pain. He has 10 mg. oxycodone from our family doctor here at home. I told him three times lat night and again this morning that he just takes ONE. He said, "I know!" He did not know. He woke this afternoon when my son was here and showed me a pad of paper he was recording his doses on and is said "two pills" on the top. "Honey, you've been taking two pills!!??!?!" "Yes, I did at the hospital..." I explained to him that he was taking WAY TOO MUCH. No wonder he can't stay awake. I made him up daily charts so he can write it down when he takes his pain medicine, how much water he's drinking, and calorie intake from his Boost. At the top of each daily page it says TAKE ONLY ONE PILL OF OXY!! I told him to hold off as long as he can before taking any more today. I don't think that will be a problem. He has fallen asleep again over there texting his brother... I worry because the last few weeks his mental state has been off. He never has listened to me much in the last 42 years so I am not sure why I'm worried, but lately it's been different. He will give me the strangest looks as if he's a million miles away or he's not sure where he is. (This has started before the oxy incident mentioned above, by the way.) Then I think "has the cancer gotten to his brain!?" Ugh. I snagged a chiropractor appointment at 12:40 today. Norman and my husband were napping when I left so I felt like I could leave for half an hour. He said my hip was way out of place and my neck was good and knotted from stress. I cried and told him about my week. He hugged me, then adjusted my hip, my spine, then snapped my ankle back in place. It felt wonderful and lasted approximately three hours. Sigh. My cousin suggested that I see an orthopedic doctor about this as his Mom had such issues and if she had see one he was sure she wouldn't have suffered so much. I might do that as soon as I have time to go to my family doctor so I can get a referral and find an ortho doctor, go to said doctor, get xrays, etc. I have iced my hip and ankle today as well. At least it isn't such searing pain where I want to slit my wrist and cry constantly. That is an improvement. I caught up on my dishes today/tonight and caught up on laundry. I swept the living room rug where Norman gutted a new toy. I worked a full day, too. It felt good to be home. We go Monday to the hospital to get a port installed for his infusions. Both of my husband's arms looks horrid from the bruising from the IVs. He looks like he lost a few fights for sure. They can't find veins to do blood work with much anymore. I will have to figure out how to give him a "bath' because he can't step over the tub any more and he suggest getting Norman's plastic pool for summer. I almost considered it but it wouldn't fit in the bathroom. He is supposed to shower with antibiotic soap before Monday's port installation - but that isn't going to happen. I emailed his Cancer group asking questions and letting them know he did not want to try chemo this next week. (He was scheduled to start on Thursday.) We see his cancer doctor on Thursday. I believe, even if he doesn't do chemo, he will still need those infusions to keep his sodium levels up, but it hardly worked at the University of Michigan. We carry on. March 12, 2022 - I decided to be lazy just now and I loaded Norman in the car and drove to my own mailbox. That way I didn't have to cause my ankle pain by walking and Norman got a 'ride' so he is happy. It is windy and cold today and right now the temperature is 16 with a wind chill of 2 degrees. I saw on the on line patient portal that my husband no longer had a scheduled visit with his cancer doctor. I was kind of upset. I emailed him and the oncology team, but I doubt I'll hear from them since they didn't respond last week when I asked questions. For us having to deal with this bad of cancer makes me feel like the medical people should be prompt in response. For them I am sure it is just a job and they get out at 4:30 whether you are dying or not... I will call Monday morning. He is due to have a port put in for chemo on Monday morning but I don't know if he has enough strength to make it up there and back. There is a whole day for him to get some spunk back... My boys came over to babysit Norman and their Dad so I could go to town and get prescriptions and some groceries. The pharmacy had not filled the bed sore cream since insurance wouldn't pay for it until "the13th" because he had a previous prescription for it. I told them to just give it to me and I would pay for it. Cripes. They can't make a one day concession? Really? (As you can tell, my patience for rules and regulations have flown out the window at a high rate of speed.) He is starting to get sores in more places down there now and this is no time to follow stupid rules like that... When I got back I asked them to stay long enough for me to take a real shower. He had an accident on the kitchen floor - he had to pee so bad he couldn't make it to the bathroom. I cleaned him up, changed his socks and shoes and night shirt. I cleaned up the floor. He has also finally started to try to have bowel movements after a whole week without but they are so hard and compact I have to get up in there to get them out. I feel bad for the boy. I have ordered a stand alone commode to have here in the living room for him in case he has to go so badly he can't make the trip to the toilet in the bathroom. Now, I just have to figure out the best way to clean the boy. We do not have a walk in type shower area, and he can't lift his legs over the tub, so I will have to just do sponge baths I suppose. My son suggested maybe a camping portable shower - some of the truck driver's he's seen on the road use those - but where would I set that up? I am sure sponge baths will work for now, but if anyone has any suggestion on how to wash his hair, please let me know. His feet and legs are so swollen. That has to hurt or be very uncomfortable. I loosened his tennis shoes as much as I could. After I cleaned him up from the accident, I also cut his toe nails. Maybe bodily maintenance will just be sections a day. My daughter will be down next weekend to help me out and I am sending her home my older car so she can come 'home' if I need her. She doesn't have her own car and she can't drive a stick and that is what her husband has in his car. All the kids have been awesome. All my friends have been so supportive. I am blessed. My dear friend Lisa just stopped by to drop off a watercolor painting of daffodils she had painted for me. She held me and rocked me for a while. That felt comforting. My husband gets upset when people come over and I totally understand NOW, but he's always been that way and I need these people... He was in the bathroom when Lisa came in for a second. Our neighbor down the road stopped by earlier, too, to bring us a pumpkin roll just to be nice and say they were all praying for us. That was also very sweet. Everyone has been damned supportive. The drafts from the lawyer came while we were in Ann Arbor. I will call them Monday too to ask if they can come here to have Todd sign his part. I doubt he'd make it in and out their office to do so. Maybe it can also happen when my daughter is home because there is stuff she has to sign too, since she if my runner up on things in case I die first. I think life goes by at the speed of light your whole entire life until you get old or get to dying - then I think time shrieks to a halt and makes you suffer a little. Almost like it is saying "Neener neener NEEEENER!" The only good thing lately is that I've not even LOOKED or LISTENED to any news. Nukes could be inbound and I'd not know until I was a dust pile on the floor. To be totally honest, it has been nice not to worry about a possible WWIII and nice not seeing all the stupid in the outside world. Maybe this whole cancer thing is a way of saying 'enough is enough' and 'just enjoy your day to day, moment to moment life' which is just fine by me. He just had a bowel movement on his own! Hurray!! See - moment by moment - small victories - I will enjoy those. March 15, 2022 - So much seems to have happened in the last few days... I am very tired - I have to get up every two hours to tend to my husband's potty needs. He made huge mess trying to make it to the bathroom last night. That took 45 minutes to get him and the floor cleaned up. (When this is all over, I am throwing that damned bell away...) People have been so generous. I cannot begin to explain how in awe I am of everyone's offers to help and the gifts and the love. When things are at their worst, you realize how blessed you are.. My son was over yesterday because my husband was scheduled for a port insertion. Husband said he didn't feel able to go and he has chosen no chemo anyway, so I cancelled the port process. His feet are swollen and so huge and so are his legs. He can barely get up on them. My son stayed even though we were not going up and did chores for me and kept Norman entertained. Today my son came over again since we finally got an appointment with the cancer doctor but once again my husband said NO he couldn't make it. I left messages this morning for the doctor and the cancer team and the doctor's nurse and had not head from anyone. I finally called and talked to a nurse navigator this morning. She happened to be my nurse navigator from when I had breast cancer and she remembered me right away. (I tend to leave an impression on people, I think...) She listened to all of my concerns and she said she would go right up and talk with the cancer doctor. It wasn't even an hour later and she called back to tell my his doctor would call at 11 to talk to me personally. Bless her soul. When the doctor called, he said that chemo was not a valid thing for my husband anymore after seeing the blood work from U of M. He said he didn't know it would progress this fast. I wish he had know sooner so we wouldn't have put the poor dude through that second bile duct surgery. He said he would call hospice for us and get that going. I was relieved. I need some kind of help. When hospice called, I told them the first thing I needed was one of those recliners that lift the patient up so they can stand. They don't have those anymore since they were being returned with bed bugs and the like. Ugh. Hospice will come on Wednesday at 10 a.m. My brother in law stopped by and since he has a truck, I called the closest furniture store and ordered one of those chairs and paid for it so my brother in law and my son could run and get it. It was a sign - since we now had a truck and all. They got it, hauled the old one out and put the new on in. A blessing really. My youngest learned to work all the buttons and showed his Dad when they had it set up. The chair also works to get him closer to his suction machine so he can clean his stoma on his own. I am glad he can still do that for now. Right now he's trying to do it but is sleeping again. I just woke him up to finish. The lawyer and his assistant came over at 3:30 to have us sign all the paperwork for our wills and power of attorney and power of health attorney and the ladybird thingy that keeps the house out of probate. That is all we have - is the property and the house. We have never been materialistic people to amass any great amount of anything except a large great dane and a muddy driveway. I ordered a stand alone commode to have in the living room and that came today and my son assembled it. My husband hates it - it hurts is hind end way too much. Ugh. I also ordered some overly large socks to fit his swollen feet and two pairs of edema slippers so he'd have back up if he messes up his current pair again. I hope I get a chance to use them... Now I'm falling asleep typing so I will just update the site with this info and sleep in my chair while I can until the bell rings. Thank you all for your concern, your prayers, and your generosity. March 16, 2022 - When my husband wants a Boost to drink, he ask for Covid. Somewhere in his brain those two words are all discombobulated. Poor dude. He got 'admitted' by hospice today. Two very nice ladies came to the house and we talked about everything. Early this morning he said, "Hospice comes in and takes over everything..." he was worried about that. I told them that when they walked in so they talked directly to my husband that their only job was to make him more comfortable and pain free. They didn't take over 'everything' and withhold drugs for him or over drug him. This seemed to calm him down as he slept through most of the visit. I should have a nurse on site twice a week and someone to come out several times a week to do bathing, etc. I am thinking about now, though - will we even need them? It seems to be going at such a fast pace. His urine is dark already and he is turning yellow again so it is obvious his stents already failed. If the cancer doesn't kill him first, that bilirubin will... He gets scared if he thinks I'm gone. I took my keys to drive my car to the mailbox since my foot still hurts so badly, and the look on his face when I left was so sad. I took the phone outside today to call the local funeral home. (My son was here to keep an eye on Dad.) I stressed to the nice lady who answered that I did NOT want a phone call to the house yet since it is such a small house and I didn't want to talk about cremation in front of the poor man. Three times I told her this and gave her my email and requested just pdf documents sent to me with pricing on basic cremation. She said she would make sure the director that took the info knew all of this. So who in the hell calls while I'm out with Norman? THE STUPID FUNERAL DIRECTOR. I WAS SO DAMNED MAD. Immediately they lost my business by leaving a message so my poor husband could hear. How stupid can you be? I have another funeral home to call tomorrow. We just want a basic cremation. Nothing fancy. Lordy - I can't tell you how mad I was. When I called him back I told him how mad I was, boy howdy. My husband woke up a bit ago and had to pee. He has to stand up to do this and once he's done, I clean him up and back in the chair he goes. Five minutes after that he was raising his chair up almost as far as it could go to the point he could have fallen out of it. "Where do you think you are going young man?" I asked him. He opened his eyes for a second and just shrugged his shoulders. I told him to lower himself down Five minutes after that he told me had to pee again. "Honey, you just went...are you sure you have to go?" He decided to wait. He waited another three minutes. Since he's started getting bad I could almost sleep 1/2 hour in between getting him up to pee when he requested it - but now I think I won't be able to sleep at all. If he messes with that chair and ends up on the floor.....oh my, I don't even want to think about it. I am glad my new coffee maker came today. After he sits down, I am taking the controller for the chair away from him and hanging it on the table next to him so he doesn't have a moment of lucidity, feeling the controller in his hand, and setting himself up again... I mentioned that maybe he would like having a catheter and bag - that way he wouldn't feel that urine pressure. He didn't say anything, just went back to sleep. I don't have many regrets in my life but the one I do have was not knowing how bad off he really was and making him go through that stent surgery last week. All that undo pain and discomfort. Going forward I am going to be more aggressive with doctors and ask more questions and demand they tell me things. (Not for my husband but for me in the future.) I feel like all the crap that is happening to my husband now is what my poor friend Laura went through with her cancer. It was like the hospitals and doctors just kept taking the money and putting her through more stupid stuff and didn't care about HER. I feel that way again about my husband. March 17, 2022 - I gave him pain meds at 12:30 a.m. and the next thing I know is he's calling my name at 5 a.m. I have not slept for that long of a period in two weeks. I was disorientated!! He said, "Call hospice and tell them to haul me away - by body is tingling and everything hurts and I am so weak..." I did call hospice and they sent out a nurse. We've not even seen our 'real' nurse yet. She helped me change him and she doctored his (now) bleeding bed sores. She checked him over good. "I will get it started to get him some panic meds"... I figured it was panic too. If I was dying I would be freaking out terribly. They'd have to keep me sedated. March 18, 2022 - My daughter and son in law came in last night to see their Dad. My daughter was afraid he might leave before she could see him and say goodbye. They stayed until 12:30 a.m. this morning. I gave him a pain pill at that time but he won't respond to me this morning to take another one. Once I post this I will call hospice to find out if it OK to do the morphine now if I can't get him to swallow a pill. Every once in a while his shoulder will flex and he grimaces, so I know he feels pain. He saw his official case nurse yesterday. She said he was actively dying. (I think we are all actively dying since the day we were born.) Hospice sends you a 'comfort box' you keep in the fridge for the last part of your loved ones prep for universe launch and last night we also got four different pain meds and panic meds delivered from a pharmacy. My house looks like a hospital exploded. March 19, 2022 - Starting yesterday morning I couldn't talk my husband into waking up enough to take in any pills (or he just couldn't understand) so I called hospice and the nurse came out. I believe they did not think this would progress as rapidly as it has. She ordered all liquid meds to be delivered. Until then I had to crush the meds into a fine powder and use a syringe to put them in his mouth. At this point it is just keeping him pain free of course. The kids were all here yesterday all day and will return today. They have taken care of all my chores, brought me breakfast, entertained Norman, and have been a godsend to me. Friends have brought food and cards and comfort. My house looks like a hospital room exploded. I got two - three hour sleep blocks last night. I needed it. They have him on pain meds and anti anxiety meds every hour, but I didn't wake up for that and he didn't seem to need them. He tried to cover his stoma to talk last night around 1:30 a.m. and couldn't get his hand up there, so I covered it and he said, "Are you ok?" and I told him I was just fine. I am not sure if was consciously 'there' or having a dream... Every odd noise I hear I think it is him reacting or panicking or seizing. I hope this ends soon for his sake and mine. I won't sugar coat that part. He needs to be set free of his stupid failing body so he can head to the universe. We made plans earlier to meet up at Jupiter when it is my time. I am all confused on what day it is and all - I feel like I'm living in a bubble which I am sure is normal for this situation. I have trouble talking to humans at this point - so I stick with email and texts. Who would have ever thought I would have trouble talking? (Insert weak smile here...) March 20, 2022 - The kids were over all day yesterday and we played my husband's favorite music for him. We told stories. I am sure if he was able he would have added some funny side notes to all of our talking. They will be back today to babysit me, then if my husband is still holding on they will most likely go back to work on Monday. They do need to earn a living after all, since I love them and all but I don't want to support them. Smile. The hospice nurse that came yesterday told me it could be another three weeks?!! I told her to ask our primary nurse what she thought. (Our primary nurse who first saw my husband on Thursday was actually shocked at how fast he had gone down hill on Friday. I am sure it is due to the bile attacking his brain along with the cancer ravaging his body at the same time. When the nurse did get a blood pressure reading on him yesterday, it was way way low. I've not gotten a response from him in two days, although he did flinch when I gave him a dose of cold anxiety med from the fridge and he reacted very poorly when the nurse was checking his legs yesterday. I know they hurt badly. Hospice keeps ordering things he'll never use. I told them to cancel the commode. He will never ever get up again to use one. I will have to find a place to donate all this unused stuff to once this is over... I keep his mouth moist with a sponge on a stick and moisturize his lips. Since he breathes through a stoma and not through his mouth/nose I've noticed that the stoma area is almost 'caving' in now on his neck/chest area. He is so so so so yellow. Almost glows at this point. His own body is attacking him and I will forever find this unfair. Now he's in his brain alone, trapped, while his body does what a body does - try to 'save' itself in various ways by shutting down things to protect the key organs. The body design is awesome - I don't doubt God's grand design - but the dying process of life just sucks. I just re-read all I've written in since this all started. Wow. Now it seems like all of that didn't even happen! This has been a fast track ride for the poor boy. He stated back after his first stent surgery that it was unfair to work all your life to retire and then "this Sh%T" happens. I totally agree. March 21, 2022 - My daughter and my son in law came over yesterday to help me. I wanted a shower. I took a shower. When I got out of the shower they said Norman had gone over to Dad's chair and took up a spot there beside him - like a Anubis guard dog - and Dad's breathing was changing. I sat down next to him and I rubbed his arm and I gave his body a good lecture. "Let my husband go - the pain you've caused him is too much - set him free!!" It was then, really, that he just stopped breathing. It was peaceful. Quiet. It was over... My son in law called hospice for me. (They have to have a nurse come pronounce him deceased, then the hospice nurse also calls and arranges for the body to be taken by the funeral home of your choice.) When she got here I made her hug me. She did so freely. She checked for a heart beat for a long time, and 'called' the death. It was 1:20 something by her notes but he left us as 12:23 p.m. on Sunday March 20th. I texted his sisters and brother and my closest friends an our dear neighbors. We all went outside after that, waiting for the funeral home to come pick up Dad. I did NOT want to be in the house when the moved him. I just couldn't. The kids agreed they didn't want to see him moved. It wouldn't be very dignified to move that poor boy and none of us wanted any part of it. Once the funeral home guys came, just two of them - an older tall man and a young, small dude. I didn't think they would be able to move my husband - just the two of the alone - but they managed. They were very kind to all of us. They came out in the dog pen afterwards and asked if we wanted to say one last goodbye now that he was in the van. We declined. We had all been saying goodbyes for a few days. We didn't want to remember him on a gurney in a van... I felt very dizzy and odd after that. I drank several beers fast and furious like. I felt like the weight of the world was lifted from my shoulders but that left my body hurting and sore. I needed to sleep a while. The kids watched Norman and I went to sleep in my own bed for a few hours. It felt good. Honestly, he picked a wonderful sunny spring day to soar. There are buds on all the trees and the sky was pure blue. I am so happy that awful pain isn't torturing him anymore. My poor kids are all dealing with this in their own way but they are also communicating with each other, and this is good because at times like this you need your siblings. I have awesome kids. And to my husband - remember - we have a deal - when I go we meet up at Jupiter before we send our energy out to the universe. (We really never took a real vacation our whole married life, so shooting around the universe will be nice.) March 22, 2022 - I was on hold for a total of 1.5 hours today with Social Security. I had called once and was on hold for 45 minutes before someone picked up and hung up. I called back and waited another 45 minutes for a human. You have to report the death of a spouse, so that is what I did. I am angry that a government agency like social security is probably managed by one human for the million Americans here while the government throws money away on stupid fricken stuff. To get an appointment to get my measly 250 dollar funeral cost I have to wait until mid May. Really - we've done something horribly wrong with our government agencies. It is a pure joke. Nothing should be that convoluted and complex to just speak to a human on a phone. Now, the bank and the funeral home, on the other hand, have been nothing but marvelous and kind. I appreciate the heck out of them. March 23, 2022 - It is pouring rain out but I always found the sound of rain to be very peaceful. We may get thunder boomers later today, too. I know how to turn on the generator and get stuff going in the event we lost power. I am ready for that. For three nights I've slept in my own bed and I have gotten good sleep. My bladder and Norman's bladder are good for one 'wake up to pee' during the night, though. This morning I did not want to wake up. I could have been cuddled in bed all day. I left the house last night after putting Norman in his kennel crate. I needed milk and some other things so off I went. I've not been in a car in like two weeks. I felt dizzy at first, driving. Tonight I get my hair cut and a quick color. I've had to cancel three different appointments over the last three months due to my husband's situation. I am one shaggy beast. My ankle feels a tad better and I am forcing myself to use it. I walked the recycling container out to the road last night and got mail. Today I will take out garbage herby curby to the road. I went on a short 'I HATE THIS' spree in the house Monday, so I filled up the garbage pretty fast. I hated various medical supplies I needed to take care of Homer and forcefully threw them away. I hated various medicines - and threw them away. I hated a particular blanket, and threw it away. It was therapeutic for me. I cannot thank my friends and family enough for all the support. I am surrounded by real life angels. It is actually quite overwhelming. How can I express my gratitude to so many people? Been so blessed... I swear when my sister left us, she gave me two distinct signs that she was saying goodbye. I do not expect a sign from my husband. My husband wasn't one to go above and beyond to do something really 'special' for any event, so I am pretty sure that would include dying. Maybe, when I least expect, he may surprise me. Once you are pure energy - who knows what one can do? March 28, 2022 - People have been so kind, so generous, and so supportive. I can't even begin to imagine how I can properly thank all the people who have supported my family. For lack of a better term, it blows my mind - the kindness. I will take all of that love and pay it forward to others. I will keep this love moving... The memorial service on Saturday went well. There were so many that came. People turned out that I've not seen in years. My kids - their friend came. It was awesome. I hope my husband was somewhere seeing all of this support and love. He would have been totally amazed. |